This simple blog is just my brain dump. I started this so that I can survive every day and continue to get out of bed. Some days the blog will be about Isabella and some days it will be about a good turkey sandwich I ate. So bear with me kids…
This simple blog is just my brain dump. I started this so that I can survive every day and continue to get out of bed. Some days the blog will be about Isabella and some days it will be about a good turkey sandwich I ate. So bear with me kids…
Summer of the dragonfly 
I’m so sorry about the loss of your daughter. I lost my six-year-old son, Joey, in 2010 to an anaplastic astrocytoma brain tumor. It sucks being a part of this club, but writing about it certainly helps. Even writing about a turkey sandwich. 🙂 Hugs and love to you, mama.
Just read your ‘Awareness’ blog ( a friend shared it on FB) and my family would like to make a donation in your daughters name. What is the best foundation to donate to, in your opinion? Thank you and I am so very sorry for your loss.
There are so many great places to donate. Our foundation donates directly to Dr. Cheung’s neuroblastoma research at Memorial Sloan Kettering Cancer Center in Manhattan. He has devoted his life to finding a cure and develops many of the drugs in his lab so as to avoid the drug companies. Isabella was treated there for 5 years.
Beautiful writing warrior Mama….
I read your article..as the tears welled up in my eyes, I was yet again reminded… This is why I fight! This is why I spend day after day talking to people about getting on the list.. No, the list of people on the bone marrow registry is not the answer for every child,but it can help some. It can relieve the pain of a hurting family, by giving them another treatment option(if possible). I’m even more motivated after reading your story to do more! The amount of money that does NOT go to research and the treatment of childhood cancer is absolutely absurd. Children are our future! We should be fighting for/with each and every one of them! Profitability has no place in the equation.. If abortion is wrong, so is ignoring a child with cancer that could be helped! Sending you all the love that I can through this website reply box..
I am in the dark in my room crying after reading your blog about awareness; I am sorry that you are so aware. I think most people are afraid to even hear about pediatric cancer because they are afraid of it coming to their family.I am working hard to do something every day along with an amazing group of volunteers. I founded an organization that supports pediatric cancer families even though I have never faced it in my family (but am well aware that I could because I know the stats). We go beyond awareness and try to make a difference in their lives. The amazing thing is most of our amazing, committed volunteers haven’t faced it either. Instead they are just (mostly) women helping other women through crisis. I talk about cancer at my house regularly; my kids know about it and have met and made friends with cancer. I am not even sure where I am going with all of this but know that there are people fighting to help maybe not to find a cure but to make those days easier as they face the beast. In our area we have a whole bunch of selfless fairy godmothers rumning around, making and delivering meals, checking on the families, mowing lawns,raising money and so much more. I guess I want you to know that we are out here and sometimes raising awareness lights a fire and a passion as it has in me to make a difference.
Dear god your blog has just rocked me to the core. There really are no words. I have a 2 year old son and live in constant fear of something happening to him. I’m currently a nursing student and I am going to figure out how to DO SOMETHING, instead of just being ‘aware’ (you’re right…that’s bullshit)….
Don’t even know you but I can’t get you off my mind.
Please tell me what nonfinancial things I can do to help. I really want to make an actionable difference.
Thanks for sharing your story, warrior mama!
I stumbled across this site by accident and it is absolutely inspirational!